Friday, June 15, 2012

Start Of A New Beginning

Eon had his repeat EEG on June 7, 2012. It was by the request of Child Neurologist Dr. Agbisit to check Eon's brain activity and see if it's normal, then his maintenance medicine can be tapered and eventually stopped. He was supposed to be asleep during the procedure so we went there at past 12 noon just in time for his afternoon nap. However, when we got there,it seemed he got so excited he couldn't sleep. He kept on laughing and smiling at the people around him and it actually took us an hour for him to put him to sleep. We cannot put him on the bed because we were afraid putting him down might wake him up, so all the while the EEG was performed, our long time Nanny, Nanay Diding carried him in her arms, I couldn't take him either because it might also wake him up.

On June 12, 2012, we had our scheduled check up with Dr. Agbisit and she gave us the EEG results. She was very pleased to inform us that Eon's EEG is normal and she even said that among all the EEG results that she interpreted that day, only Eon's turned out normal. I couldn't explain the happiness that I felt, finally, after 2 years and 6 months, Eon is finally free of the illness that struck him at birth, Finally, for the first time in his 2 years and 6 months of existence, Eon will be free of maintenance medicines. She gave us instructions on tapering the medicines as it cannot be stopped abruptly. The dosage will be reduced every 2 weeks, starting June 12, until about 7-8 weeks where it will be stopped altogether.
I am down on my knees thanking God for giving me this miracle.Thank you Lord, Your mercy endureth forever! Eon with Dr. Agbisit during his last check up. He was crying and saying "Mommy...."

Tuesday, March 13, 2012

Eon's Regular check up update

Eon had his regular check up with Dr. Gilda Agbisit today. We have our check up regularly every 3 months. It used to be monthly but starting around a year ago, Eon was only scheduled once every 3 months because of his improved state.


Eon's last seizure was on July 31, 2010 and last July 2011 we had our thanksgiving celebration to mark his 1st year of being seizure free. Today, Dr. Agbisit informed us Eon should undergo an EEG (Electroencephalography) test on June to measure brain waves and if the results turn out normal, and he does not have any seizure attacks until then, Eon would be maintenance free by July. It was such good news and we can't wait for July to come so Eon can be free of medicines for the first time in his life. Prayers are powerful.


Although there has been set backs with Eon's development, he is able to cope up very well and I don't mind the delay. He started walking independtly at exactly 2 years old, and now at 2 years and 3 months, he is able to say "Mama", "Mommy", "Dada", "Daddy","Nanay", and "Di" this is what he calls his ate Adi. Although we keep on calling Adi "Ate Adi", Eon can only say the last syllable.


Adi always comes with us whenever Eon has his checkups so she understands that her little brother needs extra care. Adi has been exceptional in taking care of Eon, she would always say "Mommy, ako bantay kay Eon ha" (Mommy, I'll take care of Eon) and keeps on saying that she will take care of her little brother when they go to school in the future. She's 3 years old and will be going to school soon. We told her she has to go first because Eon will have to wait another year.


Looking back at the last 2 years, I used to think that the 2-year period in which Eon shouldn't have seizures was light years away. Little did I notice that time has gone too fast and I realize that it was only through prayers that Eon survived and have become seizure free. I know it's still a bit early to celebrate, but I have faith in God and I'm claiming His promise to "Ask and it shall be given"...

I thank God for the wisdom he provided to our Pedia-Neurologist, Dr. Gilda Fernandez- Agbisit, and our Pediatricians, Dr. Norman Babar and Dr. Jinky Deblois. May God bless them and heal through them as He is the Great Physician.


To God be the Glory!



Celebrating Eon's 2nd Birthday (December 7, 2012)



Eon started to walk independently a week after he turned 2



Ate Adi and Eon having laughs together



Eon walking while Ate Adi is behind making sure she's there in case Eon can't hold his balance.