Monday, June 16, 2014

Updating after 2 years.. Endless Gratefulness..

I've not updated my blog for 2 years now.. I've gotten lazy and since I don't have a lot of readers, I thought it's just not worth the time anymore. When I opened my YM today, I saw a friend request and an offline message from a total stranger telling me the he read this blog about my son and wants to know if I have a facebook account. Without hesitation, I gave my Fb user name. I'm so happy that Eon's story is touching the lives of the few who were able to read my outdated blog and I feel guilty that I have not been able to update and document Eon's progress. I will try to squeeze in 2 years of Eon's improvement in this blog, as well as highlight the milestones of his development. I'm really proud to say that Eon has not had a seizure for 4 straight years now and We have been free from maintainance meds for 2 years. Sad to say, Eon was hospitalized in November 2013 due to Dengue, but I'm still Thankful that even if his fever reached 39.8°C (103.64° F), he did not have a seizure attack, and he was able to survive Dengue. Here's Eon while recovering from Dengue.
Eon's development expectedly is delayed. The last time we went to a Developmental Pedia-Neuro, he was diagnosed as having GDD (Global Developmental Delay). His actual age now is 4 years and 6 months, but mentally, he's only about 3 years old. Thankfully, he is now able to say 2-3 syllable words, and can say sentences of 2-3 words. His latest favorite sentence as of yesterday is "What a Joy", mimicking his Lolo as his Lolo keeps on saying this everytime Eon laughs at him. Summer of 2013, Eon enrolled in a summer class at a private SPED school. In June, we transferred him to Lighthouse Alternative Learning School and he was able to learn a lot and interact with other children. Ate Adi (my eldest) has always been protective of his little brother and she's always on Eon's side.
I have not mentioned this in my previous blogs because I did not want to seem like I was selling products, but I think it's time to give a long overdue credit to the supplements Eon has been taking ever since he was 4 months old. My mom gave Eon Fresh Royal Jelly during the height of his seizure attacks and he has been taking a few drops up to this day. I believe that the Fresh Royal Jelly is also a huge factor in Eon's development as it is able to help develop brain cells. Along with that, he's also taking Honey Bee Pollen and Kids 3, all from High Desert. I can't explain the potency or give much details now, but you can google it for more information.
These supplements has also been able to taper Eon's hyperactivity and tantrums. 5 year old Ate Adi is also taking Kids 3 and she's top of her class. She finished Kinder I with honors. She's also Best in Oral Recitation, Math, and Science. My next blog will all be about Ate Adi, her trauma, and her being the big sister even with only 13 months senior to Eon.

2 comments:

Unknown said...

Good pm..nabasa ko po story ng baby niyo at walang pinagkaiba sa ngyari s baby baby nmin. Lumakas ang loob ko dahil s mga nabasa ko. i am sittie saidah, taga maguindanao..isa akong muslim. Sana maging maayus din ang baby ko..2 months and 7days p siya at patuloy pa din check up namin s davao kay dr. Agbisit.

Unknown said...

Your son's story really inspire me. God is really good and im with the same case. Madami dn ang pinagdaan nmen ng baby ko. Sept 2019 nung madiagnose na my hydroceph c baby nsa sinapupunan ko plang sya. Tlgang matindi ang pagsubok n pinagdaanan nmen nung mga panahon na yon. Oct.20 2019 nung ipanganak ko c mirafaith premature dahil nov.19 pa dpt due ko, pro ginawang full term ni God by His grace and mercy. Nakaready n ang pedia at ibang specialists dhl alam nila ang case ni baby pro ngtaka ang neuro surgn dahil halos wla cla makita na fontanelles eh hydroceph c baby. Madami test ginawa at wla pressure n nakikita pra mgworry. Pag hydroceph ang baby dpt malaki at bulging ang fontanelles pro c mirafaith ay hindi. Mas ng aalala ang neuro surgn n c baby ay mgmicrocephaly nmn. Sa ct.scan result ngkaron ng opening ang fontanelles nya compare nung ipanganak ko sya at until now deretcho prn ang pagmomonitor ky baby na wag agad magsara ang fontanelle nya. Almost 7months na c mirafaith at still prayjng for God's miracle na patuloy nya hawakan c baby faith.